Seizures

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MommyMachine

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      MommyMachine

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      Ok. I need a little advice on a subject I don't know much about. Seizures in children. Ive googled my brains out, and still am not sure what to expect. If anyone, anywhere, has a little bit of insight, I would surely appreciate it. Here is a little bit of history:

      My 1 year old daughter, Brooklyn, suffered from a febrial seizure after her temperature reached 107.1 degrees. I called 911 and it took them forever to get here. The seizure lasted about 10 minutes. We go to the emergency room, where it was established she had an ear infection that was untreated that caused the temp spike.

      2 days later I go into her room, and she was convulsing in her crib. This time it lasted under 1 mimute, she woke up, and acted like nothing had happened.

      3 days after that she was sleeping in bed with me and I woke up to the bed shaking, she was choking. I call the dr and he tells me until her insurance is approved ( were waiting on her birth certificate from las vegas) there is nothing he can do.

      1 week later she is playing in the living room, and fell and bumped her head, and a seizure came. That was last month, and she hasnt had one since. However, she now talks out of the side of her mouth, and walks to one side.

      Again I asked her Dr. about this, and they will not help until her insurance goes through. I took her to the emergency room, and they seemed to not be concerned. I AM!  What else can I do?

      I appreciate your help.
      • Brookiecookiemama
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      blueday

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        Hi mommymachine,

        It sounds a bit like epilepsy.

        Here is a link to the National Health Service website which you may find very useful. I have selected the link to epilepsy to save you the time looking.

        http://www.nhs.uk/epilepsy

        I hope it's useful to you and I hope your daughter gets through it ok.  

        blue

        UPDATE

        Just saw her picture- what a cutie she is.
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        Imagin.ation

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        MOMMY!!!!

        In this country CHILDREN should NEVER be turned away in a case such as this. What you are going through must be the most scariest thing in your life i feel so bad for you, you have me shaking with madness. I say find another Doctor as soon as you could. Here in Las Vegas i found a doctor that would take care of my daughter with or without insurance i paid 40 bucks for her visits, have rushed her to hospitals in abulances and in my car and never once turned away. It is so appalling to me that they are putting your insurance ahead of her condition and your concerns. They could be right she might be going through some kind of childhood infliction from the ear infection, and sometimes what children go through can be more dramatic and scare us, it's strange that children can handle the sickness, but they do because they don't have it is their minds to worry as a grown adult would. Children can't tell us what's wrong and we need doctors to do it, meantime we are stuck in worry. Ear infections can be really troublesome and take a while to heal, but as you say she seems to be having more problems then just that.

        Another thing is if she is taking any kind or a mixture of different medicines it could be why, if she is, look up her medicines on the internet and see the side affects or allergy reactions read if any of it.

        My advice is find another doctor or hospital that will help you, one that will understand your concerns as her mother and not worry so much about insurance and money... oh that makes me so mad, they are out there Mommy

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        MommyMachine

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        Imag. We are from Las Vegas, I was born and raised there, and never in my life have I been turned away for anything out there, Az is waaaay different.

        With 5 kids I need some help. So I get medical insurance from the state. All of my kids have it except for her. They wont give it to me without the Birth Certificate from Las Vegas, I sent off for it nearly 3 months ago. The emergency room basically gave her antibiotics for the ear infection and sent her home. That was after the 10 min seizure. Since then I have taken her back and they have done nothing. Right now, I live in a small town, and there isnt even a grocery store where Im from, so the nearest drs office is 30 miles away, and I dont have transportation. I hope as soon as I get the BC things will change. Ive been looking for a Dr that will take her on without insurance, but so far no luck.
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          To be totally honest Mommymachine, I think it is absolutely disgraceful in this day and age that a child is turned away by a "doctor" who took the hippocratic oath, part of which reads "I will use treatments for the benefit of the ill in accordance with my ability and my judgment, but from what is to their harm and injustice I will keep them ".  This is certainly a case of injustice and there is nothing in there that says "as long as they are insured".

          No doctor who actually cared a jot about anyone, especially a young child, should turn a patient in need of help away.

          It makes me steam to think about what your "doctor" has done.  I didn't say anything in my first post because I just wanted to get that link over to you.  But I am mad as hell here. 

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          MommyMachine

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          Thanks for the link, im reading it as we speak. I believe in my heart she has epilepsy, and Im scared. I wish I could go back to Vegas, where the Dr.s at least had a heart. But I cannot. Out there my 2 sons who have similiar disabilities, got treatment, insurance or not. Out there, if you needed help, you could get it. Even with my sons disabilities im having trouble finding treatment, and they have insurance, out here they like to play the waiting game, go to the dr, wait for a referral, wait for the appointment, 60 miles away only to be told they dont accept medicaid patients, ugghhh so frustrating!!!!
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          MommyMachine

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          The way she talks out of the side of her mouth and uses mainly the right part of her body sounds like a stroke to me, but again the dr. doesnt care!
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          debo2759

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          I feel so bad the hospital is treating you this way!! Is there another hospital you could go to nearby? Is there a walk in clinic close? A free clinic? Please call the Human Services department in your town and get a referral. These people will help you get what you need for your daughter. Please keep us posted!
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          PMM2008

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          Your daughter is simply precious. 

          I dont have any advice that has not already been given, but I am praying that you find the doctor/hospital that your daughter needs and find it quickly.  A childs health is priceless, and you need to know what you are dealing with asap.

          Prayers sent, and keep us posted.......

          I will say the doctor turning your daughter away is a disgrace to the medical profession.   

                                      God Bless:
                                            PMM
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            Hi Mommymachine,

            I found some more info - I don't know if it will help but here they are

            e-medicine health
            bupa fact sheets
            Kids Health

            blue
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            tyesmommy

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            I do know that seizures in little ones are not uncommon (I learned that in some parenting class I took) and that they usually outgrow them. You're right about her impaired side being a symptom of some type of stroke.  Im just shocked and amazed that you cant get her any help in AZ....oddly enough we are moving back west (either NM, NV, or AZ). and I had just read that medicaid was particularly bad in AZ...very hard to get AND they are reducing many recipients. 
            I also know from my boyfriend (whose other son was born cerebral palsey), that when his baby had seizures they would have to give him phenobarbital (sp?). You daughter may have even gotten a bit of cerebral palsy because technically a seizure is lack of oxygen to the brain, so she may need some phys rehab. But Im no doctor so I'll just say my prayers and send warm thoughts towards your little angel's recovery soon.
            please keep us posted on how she is recovering....
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            MommyMachine

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            I really appreciate everyones help, thoughts and prayers. It means more to me than you know. Thank You.
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            dirkemans

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            i hope you have things turn out for the best soon mommy!
            its disgusting to hear how that doctor is treating you!
            when they studied they made the oath of hippocrates, sounds to me like some made the oath of hypocrisy!
            maybe remind him next time on that hippocrates thing:
            they are to do everything in their power to help those in need!
            im getting so pissed...
            sorry but stuff like that is only possible in the U.S and third world countries...
            remember that thread gene wrote a few days back?
            with the heart attack?
            maybe you should ask him for that hospital/medical instance.
            they might offer advice at least.
            good luck girl, and i hope everything gets solved soon!
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            tyesmommy

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            I just thought of something...back in L.A. we had what was known as "Free Clinics".  You didn't need any type of insurance or medicaid, you could just show up. The waits were lengthy but thetreatment was good.  They had UCLA, USC, Cedars Sainai docs come over and donate their time. Maybe they have something like that in the largest city close to you. You may want to try googling "arizona free clinic".  Nothing you would want as a longterm solution but could work in the interim.
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            MommyMachine

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            The nearest free clinic I found is 77 miles away, but Im going to go asap. My baby needs it..Monday my friend said she will take us.


            I thank you blue, for the links, alot of useful stuff to read. Its starting to sound more and more like epilepsy. I got my fingers crossed, and Im going to hope for the best.

            Dirk. Good point on asking gene, I never even thought of that.

            My prayers are also with all of you, and I hope you all have a great night!

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